I Had a Good Day

Courtney Nicoline James

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Email: Ihagd.web@gmail.com

TheMighty Author Page: https://themighty.com/author/courtney-nicoline-james/

Courtney
23 years old
Fearless.

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Recent Posts

Finding Power When Your Disease Makes You Feel Powerless
The Healing Powers of Good Nurses
I AM READY TO BE FREE – Overcoming Depression
Without a Compass- Navigating Life after Illness Changes You
The “I’m Fine” Feeling

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Over the last three days I had the pleasure and blessing to see both Shania Twain and Taylor Swift’s tours live. I had very close seats to both shows and even met Momma Swift. Unfortunately NEITHER Avenue was wheelchair accessible and was a disaster getting to and from our seats. I had to run my TPN during both shows but luckily I had my wheelchair to hold the heavy equipment and my sister to help me. It was very painful and tiring but well worth the memories 💕 #tpndependent #tubie #intestinaltransplant #shaniatwain #taylorswift @shaniatwain @taylorswift

Summer doesn’t have time for self-consciousness 💕☀️ #tubie #intestinaltransplant #tpndependent #feedingtube #port

Goodbye old central line!! I now have a port 🙌🏽 I am so glad to be home, more glad than normal. This hospital stay, while it was very short (for me) was an exceptionally hard one. I missed one of my favorite holidays and had 2 surgeries- one on my abdomen and one on my chest. Moving, breathing, is very painful. But I will conquer and get through it. To find the good in the day, as I always say, or in this case the good in an otherwise rough stay, it was my FIRST hospitalization where I DID NOT NEED my urinary catheter!!!! (Well once I had to use it to finish voiding, but close enough). A month ago I had a pacemaker placed on the nerves to my bladder and lower colon to help control my muscles and allow me to void on my own. I didn’t post about it because we didn’t know if it would even work. Like 1% chances here. When my urologist first approached me about this surgery she was justifiably apprehensive- those with my condition, she has only had 2 people have success with this surgery, and their success wasn’t even that great. Well, I like to be the one to defy statistics and I am very close to becoming independent from catheters!! Occasionally I may need one here and there, especially if I’m sick, but this is a HUGE improvement on both my physical and mental health. I am so grateful my urologist was willing to take a risk on me. So there, there’s the good in today and the good in the days to come, and what made this hospital stay good for me. No. More. Catheters. It’s hard to fight when the fight ain’t fair BUT WERE GETTING STRONGER NOW!!! 💙💜🦋💜💙 #TPNdependent #tubie #intestinaltransplant #feedingtube #port #spoonie #urinarycatheter #ihadagoodday #ihagd

My new friends!! I now have a port instead of picc line, and a gj tube instead of just a j tube. All for the better. Both surgeries went well and I should be going home tomorrow!! Happy Independence Day!! 💙💜🦋💜💙 #tubie #intestinaltransplant #tpndependent #spoonie #gjtube #port

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