I Had a Good Day

Courtney Nicoline James

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Email: Ihagd.web@gmail.com

TheMighty Author Page: https://themighty.com/author/courtney-nicoline-james/

Courtney
23 years old
Fearless.

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Recent Posts

Finding Power When Your Disease Makes You Feel Powerless
The Healing Powers of Good Nurses
I AM READY TO BE FREE – Overcoming Depression
Without a Compass- Navigating Life after Illness Changes You
The “I’m Fine” Feeling

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Surgery went well this morning! Due to my complex disease I now have two feeding tubes. One that goes to my stomach (g tube) and one that goes to my intestines (jtube). They both serve separate jobs which is why I need both. Pain is at a minimum and all is well!! Thanks for all the prayers and well wishes!! This is just a step on the way to recovery and beating this complex disease!! 💙💜🦋💜💙 #tubie #intestinalfailure #tpndependent #digestivetractparalysis

My cat bit my feeding tube (which punctured the balloon holding it in place and caused the tube to fall out). I bet my surgeon has never heard that one before 🙃 #devilcat #tubie

February 28th is rare disease day!! My (extremely) rare disease is the reason why I : - have a feeding tube - have a port - have had multiple surgeries, including bypass - have a pacemaker for my bladder - have an electric wheelchair - receive 11 infusions a week to get me my nutritional and fluid needs met (nothing goes through my gi tract due to the severity of paralysis) - travel to NYC routinely for medical care - am on the transplant list for new - to me- organs - at one point was taking over 55 medications REGULARLY - have to see so many doctors routinely, consisting of almost every specialty, including home health services (which are wonderful) AND MOST IMPORTANTLY - is the reason why I am the person I am today. I have an AMAZING support system and I have made many friends along the way through support groups and social media 💙💜🦋💜💙 #rarediseaseday #zebra #tubie #tpndependent #intestinaltransplant #pacemaker #port

Had to go to the infusion center to my port de-clotted. I receive 11 infusions a week, which keep me alive, and having a port not working isn’t the safest thing to have. Thankfully they got it after several rounds and 3 hours!! #tubie #port #tpndependent #intestinaltransplant

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