I Had a Good Day

Courtney Nicoline James

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Email: Ihagd.web@gmail.com

TheMighty Author Page: https://themighty.com/author/courtney-nicoline-james/

Courtney
23 years old
Fearless.

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Recent Posts

Finding Power When Your Disease Makes You Feel Powerless
The Healing Powers of Good Nurses
I AM READY TO BE FREE – Overcoming Depression
Without a Compass- Navigating Life after Illness Changes You
The “I’m Fine” Feeling

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THERES NO PLACE LIKE HOME 💕🙏🏽 41 days later, bye NYC!! Blessed to be continuing this journey from the comfort of my own home (and bed 😂) surrounded by my loved ones 💙💜🦋💜💙 #donatelife #organtransplant

After 41 days inpatient at Mount Sinai, TOMORROW I GO HOME!! I miss my family terribly and am so excited to sleep in my own bed tomorrow night!! While the intestinal transplant I received back in April is still looked at as a success, what native bowel I still have left is acting up and as a result, I am going home on TPN (artificial nutrition through the vein, bypassing the gi tract). We have a few options down the road to rectify this but of course we are trying every conservative method first. At the end of the day though it does not matter. Fed is best, whether it’s artificial tube feedings or eating orally- I am still getting my nutrition and we can only improve things from here and continue to recover and be successful!! Thank you to everyone for all of the love, prayers, visits, and support sent my way during this long stay. I felt it in my heart from each and every one of you! The staff here have been nothing short of amazing and I appreciate the hard work of my doctors and the entire team. Here’s to coming home and new beginnings!! #donatellfe 💙💜🦋💜💙

Been in the hospital (Mount Sinai in NYC) for 32 days for this stay. My sister came to visit me today, as did the rest of my family, and I couldn’t be more happy or blessed!! Haven’t seen them in over a month!! Hoping to go home sometime next week, then I’ll get to see them everyday! 💙💜🦋💜💙 #organtransplant

Day 21 in the hospital for this stay. I’m coming out stronger than when I went in!! My transplanted intestines just needed a break so we have been doing “bowel rest.” I lose a lot of fluids everyday so to combat that once I go home I will be BACK on TPN feedings, which at first I’ll be honest, I was disappointed about. I didn’t want to be back on artificial nutrition, but I now understand the importance of using it to keep me nourished, and to protect my kidney and liver functions, especially since I now have developed Chronic Kidney Disease on top of everything else. This will allow me to basically only eat when I “want” to and to be able to rest my intestines without needing to be inpatient when necessary. The only concern with this is preventing a line infection since I’ll now have a central line again, and being on strong doses of immunosuppressants (due to the organ transplant), I constantly have a critically low white blood cell count and struggle to fight infections. I currently have 3 and that’s with being on oral and IV antibiotics. Additionally, Rheumatology has switched my Ora steroids to IV steroids which is helped the blood clot in my arm and joint swelling and pain a lot, which I’m very thankful for!! Hematology also wants to do a bone marrow biopsy to see where everything else is at as I just had to have more blood transfusions. The transplant team is hoping to have me home by Monday, which I’m looking forward to!! I miss my loved ones, but understand as it’s a long drive to come to NYC which is where my hospital is, it’s hard on everyone, so I’m thankful for technology to keep in contact with everyone and the visits I do get 😊 This is an absolutely WONDERFUL hospital and team that I have couldn’t be better or more supportive! I’ve been staying very active, walking around the unit doing laps and my PT/OT exercises and like I said, leaving stronger than when I came in!! “I consider that our present sufferings are not worth comparing with the glory that will be revealed in us,” (Romans 8:18), it only gets better from here!! #transplant #donatelife #intestinaltransplant #tpn #centealline #artificialnutrition #fedisbest #romans #hospital #spoonie

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